Comments for FOG Magazine http://www.fogmagazine.com A Magazine for People Suffering from Chronic Pain, Fibromyalgia & Other Debilitating Diseases Sat, 13 Mar 2010 14:00:12 +0000 http://wordpress.org/?v=2.5.1 Comment on Fibromyalgia and ‘Brain Fog’ by Pablo http://www.fogmagazine.com/fibromyalgia-and-brain-fog/#comment-26803 Pablo Thu, 25 Feb 2010 23:06:49 +0000 http://www.fogmagazine.com/?p=387#comment-26803 The real fog is the fibromialgia mesh. For neurologist this "fibro fog" has a name; "congnitive impairment", and is typical in diseases like multiple sclerosis. Do not talk a neuro about fibromyalgia, ¿What is this? they say. For fibro sympthoms they have their own diagnostic, doing the right test of course. I´m fibro and spondylitis diagnosed by some reumatologist, and auto-imunne peripheral neuropathy by two neurologist. The sympthoms are the same for both. I think the only real thing is that I have anti-MAG/GD1a antidodies at high levels in my blood, have been tested for them, and some improvement with Imuran (aziatioprine) treatment, and diet, quiting dairy productos, bread, eggs. The real fog is the fibromialgia mesh.
For neurologist this “fibro fog” has a name; “congnitive impairment”, and is typical in diseases like multiple sclerosis. Do not talk a neuro about fibromyalgia, ¿What is this? they say. For fibro sympthoms they have their own diagnostic, doing the right test of course.
I´m fibro and spondylitis diagnosed by some reumatologist, and auto-imunne peripheral neuropathy by two neurologist. The sympthoms are the same for both. I think the only real thing is that I have anti-MAG/GD1a antidodies at high levels in my blood, have been tested for them, and some improvement with Imuran (aziatioprine) treatment, and diet, quiting dairy productos, bread, eggs.

]]> Comment on Fibromyalgia and ‘Brain Fog’ by barbara Keddy http://www.fogmagazine.com/fibromyalgia-and-brain-fog/#comment-26352 barbara Keddy Sun, 31 Jan 2010 05:57:31 +0000 http://www.fogmagazine.com/?p=387#comment-26352 Dear Joe: Your comments are so very sad, but you are not alone. There are so many of us out there who often feel that sense of hopelessness. have you read much on the new brain findings about changing your brain? I have written many blogs on it and there is hope for someone like you who is so young. read as much as you can absorb on neuroplasticity and read some of the articles I have written about how new brain pathways can be remapped and have hope that there is life while living with fibro. Very best wishes, Barbara Dear Joe: Your comments are so very sad, but you are not alone. There are so many of us out there who often feel that sense of hopelessness. have you read much on the new brain findings about changing your brain? I have written many blogs on it and there is hope for someone like you who is so young. read as much as you can absorb on neuroplasticity and read some of the articles I have written about how new brain pathways can be remapped and have hope that there is life while living with fibro. Very best wishes, Barbara

]]> Comment on Fibromyalgia and ‘Brain Fog’ by Joe Goolam http://www.fogmagazine.com/fibromyalgia-and-brain-fog/#comment-26334 Joe Goolam Sat, 30 Jan 2010 17:28:21 +0000 http://www.fogmagazine.com/?p=387#comment-26334 I am a 32 year old male who has been suffering with this issue for nearly 8 years and nobody has taken me seriously. I found the CFIDS website a while back and have not been to a recommended doctor as yet or to one who specializes in fibro, since my second doctor has said there is nothing medically wrong with me. I know I have a problem since I have headaches and back pain all the time; and for someone who was extremely fit (great athlete in soccer, track events etc) and also which my old friends and family can testify to, really smart. I was able to read books in a few hours and capture virtually everything and now cannot absorb one page. If it was not for my wife and kids, I would end my sorry life. I am a 32 year old male who has been suffering with this issue for nearly 8 years and nobody has taken me seriously. I found the CFIDS website a while back and have not been to a recommended doctor as yet or to one who specializes in fibro, since my second doctor has said there is nothing medically wrong with me. I know I have a problem since I have headaches and back pain all the time; and for someone who was extremely fit (great athlete in soccer, track events etc) and also which my old friends and family can testify to, really smart. I was able to read books in a few hours and capture virtually everything and now cannot absorb one page. If it was not for my wife and kids, I would end my sorry life.

]]> Comment on Fibromyalgia and ‘Brain Fog’ by Tammy http://www.fogmagazine.com/fibromyalgia-and-brain-fog/#comment-26205 Tammy Fri, 22 Jan 2010 15:52:14 +0000 http://www.fogmagazine.com/?p=387#comment-26205 My doctor told me in November that based on all my symptoms that she feels that I have FMS. I went through three months of terrible pain and most every FMS symptom that is known. After talking with my doctor, there have been many signs for years but I still don't know if I truly want to say that I have FMS. After Christmas, I began to feel somewhat better. By the first of the year, I thought that I was beginning to feel like my old self again. But just as I think that maybe my doctor was wrong, I will have a bad day or two or so. Just achy all over, have a headache, very tired, and just mentally feeling out of it. My doctor ran about nine different blood tests to rule out any other problems, but I have two questions: first, are there any other tests that can be performed and secondly, I am still unclear how to know if I am having a flare-up. Is it possible to go for a period of a few weeks where you feel good and then start to feel some symptoms again. I have been researching online, but need some clarity on FMS. My doctor told me in November that based on all my symptoms that she feels that I have FMS. I went through three months of terrible pain and most every FMS symptom that is known. After talking with my doctor, there have been many signs for years but I still don’t know if I truly want to say that I have FMS. After Christmas, I began to feel somewhat better. By the first of the year, I thought that I was beginning to feel like my old self again. But just as I think that maybe my doctor was wrong, I will have a bad day or two or so. Just achy all over, have a headache, very tired, and just mentally feeling out of it. My doctor ran about nine different blood tests to rule out any other problems, but I have two questions: first, are there any other tests that can be performed and secondly, I am still unclear how to know if I am having a flare-up. Is it possible to go for a period of a few weeks where you feel good and then start to feel some symptoms again. I have been researching online, but need some clarity on FMS.

]]> Comment on Kitchen Tips by Susan Diehl http://www.fogmagazine.com/kitchen-tips/#comment-26172 Susan Diehl Tue, 19 Jan 2010 14:45:06 +0000 http://www.fogmagazine.com/?p=428#comment-26172 great article, so useful, and simple. Thank you! great article, so useful, and simple. Thank you!

]]> Comment on Fibromyalgia and ‘Brain Fog’ by barbara Keddy http://www.fogmagazine.com/fibromyalgia-and-brain-fog/#comment-26154 barbara Keddy Mon, 18 Jan 2010 04:08:50 +0000 http://www.fogmagazine.com/?p=387#comment-26154 Darcy: How about mentioning fibromyalgia to your family physician to see what the response is? Darcy: How about mentioning fibromyalgia to your family physician to see what the response is?

]]> Comment on Fibromyalgia and ‘Brain Fog’ by Darcy http://www.fogmagazine.com/fibromyalgia-and-brain-fog/#comment-26151 Darcy Mon, 18 Jan 2010 01:01:30 +0000 http://www.fogmagazine.com/?p=387#comment-26151 MAN!!! this explains so much! I have been going to the doctors for years now and know one can tell me what isgoing on.... Elevated ANA, body aches, cant loose weight , my bones in my legs ache, brain fog is the worst and have just started stuttering.... where to from here? Damn doctors havent said anything about fibro. MAN!!! this explains so much! I have been going to the doctors for years now and know one can tell me what isgoing on…. Elevated ANA, body aches, cant loose weight , my bones in my legs ache, brain fog is the worst and have just started stuttering…. where to from here? Damn doctors havent said anything about fibro.

]]> Comment on Fibromyalgia and ‘Brain Fog’ by barbara Keddy http://www.fogmagazine.com/fibromyalgia-and-brain-fog/#comment-26051 barbara Keddy Tue, 12 Jan 2010 15:13:57 +0000 http://www.fogmagazine.com/?p=387#comment-26051 Remembering names and especially book titles and authors which I needed to know for teaching was so difficult for me too. Now even people I know very well I sometimes can't remember their names. Added to this is the aging process which doubles the problem. I am trying many strategies to remap my brain and the challenges are enormous! The more anxious we become the worse it is! Deep breathing helps sometimes. Best regards, Barbara Remembering names and especially book titles and authors which I needed to know for teaching was so difficult for me too. Now even people I know very well I sometimes can’t remember their names. Added to this is the aging process which doubles the problem. I am trying many strategies to remap my brain and the challenges are enormous! The more anxious we become the worse it is! Deep breathing helps sometimes.
Best regards, Barbara

]]> Comment on Fibromyalgia and ‘Brain Fog’ by Dawn http://www.fogmagazine.com/fibromyalgia-and-brain-fog/#comment-26045 Dawn Tue, 12 Jan 2010 12:07:48 +0000 http://www.fogmagazine.com/?p=387#comment-26045 I,too, suffer from b rain fog. It is by far the most stressful and embarrasing symptoms for me. I teach school, and I often struglle with my organization and memory. I forget meetings (even though I have written everything down), forget where I put thins, and when I talk to colleagues, I can't even get my words out correctly. I have also started to stutter, and that is even worse since a lot of my job involves speaking. What do you do when you can't get a student's name out? I call kids 'honey' when I get stuck! I am sure that my boss would love to replace me with someone who is more togeterh and healthy. I am at home again today with a flare up. I am so embarrassed of myself, and so worried about getting into trouble where I work. Not everyone is understanding of this. I,too, suffer from b rain fog. It is by far the most stressful and embarrasing symptoms for me.
I teach school, and I often struglle with my organization and memory. I forget meetings (even though I have written everything down), forget where I put thins, and when I talk to colleagues, I can’t even get my words out correctly. I have also started to stutter, and that is even worse since a lot of my job involves speaking. What do you do when you can’t get a student’s name out? I call kids ‘honey’ when I get stuck!
I am sure that my boss would love to replace me with someone who is more togeterh and healthy. I am at home again today with a flare up. I am so embarrassed of myself, and so worried about getting into trouble where I work. Not everyone is understanding of this.

]]> Comment on Fibromyalgia and ‘Brain Fog’ by Lorie http://www.fogmagazine.com/fibromyalgia-and-brain-fog/#comment-25962 Lorie Fri, 01 Jan 2010 21:41:41 +0000 http://www.fogmagazine.com/?p=387#comment-25962 I posted something and there is no reply back to it. But it does say: "Lorie on Your comment is awaiting moderation. August 30th, 2009 12:31 pm" What does this mean? I don't have a clue, but it seems mine is the only 1 that looks like this. I posted something and there is no reply back to it. But it does say:
“Lorie on Your comment is awaiting moderation. August 30th, 2009 12:31 pm”

What does this mean? I don’t have a clue, but it seems mine is the only 1 that looks like this.

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