Comments for FOG Magazine http://www.fogmagazine.com A Magazine for People Suffering from Chronic Pain, Fibromyalgia & Other Debilitating Diseases Thu, 29 Jul 2010 23:02:05 +0000 http://wordpress.org/?v=2.5.1 Comment on Are Women Wimps? by Danielle http://www.fogmagazine.com/are-women-wimps/#comment-28049 Danielle Thu, 10 Jun 2010 05:47:30 +0000 http://www.fogmagazine.com/are-women-wimps/#comment-28049 oh yea! wimps??? are you kidding?! i would like to see a guy go through natural child birth TWICE and then see who the wimp is! oh yea! wimps??? are you kidding?! i would like to see a guy go through natural child birth TWICE and then see who the wimp is!

]]> Comment on In the Middle of the Night - Once Again by Danielle http://www.fogmagazine.com/in-the-middle-of-the-night-once-again/#comment-28048 Danielle Thu, 10 Jun 2010 05:38:35 +0000 http://www.fogmagazine.com/in-the-middle-of-the-night-once-again/#comment-28048 Wow! here i am awake right now and reading this! made me think of the sleep study i had done. I had to go for a total of three visits. yea, try to sleep with all those wires attached to you, laying flat on your back, with one pillow, on an uncomfortable bed, in a strange place, with someone coming in and out of the room, while they are watching you from a monitor! yea so relaxing!!! anyway, on the last visit the doctor had to give me a sleeping pill as none of the tests were getting anywhere, on that last night, she came in to take off the wires and you know what she told me??? you DEFINITELY have fibromyalgia! Even with a sleeping pill your brain doesn't completely fall asleep. I don't know how you do it, she says. well we "live with it". So if any of you think you are crazy, your not. You actually can't sleep, even when you think your sleeping you aren't. So all the sleeping changes advice we get on how we can sleep better, it doesn't work. We need a cure for our disease! yes, it is a disease! not a syndrome! you can get over a syndrome, you can't get over a disease. We just need a cure! Wow! here i am awake right now and reading this! made me think of the sleep study i had done. I had to go for a total of three visits. yea, try to sleep with all those wires attached to you, laying flat on your back, with one pillow, on an uncomfortable bed, in a strange place, with someone coming in and out of the room, while they are watching you from a monitor! yea so relaxing!!! anyway, on the last visit the doctor had to give me a sleeping pill as none of the tests were getting anywhere, on that last night, she came in to take off the wires and you know what she told me??? you DEFINITELY have fibromyalgia! Even with a sleeping pill your brain doesn’t completely fall asleep. I don’t know how you do it, she says. well we “live with it”.

So if any of you think you are crazy, your not. You actually can’t sleep, even when you think your sleeping you aren’t. So all the sleeping changes advice we get on how we can sleep better, it doesn’t work. We need a cure for our disease! yes, it is a disease! not a syndrome! you can get over a syndrome, you can’t get over a disease. We just need a cure!

]]> Comment on The Pain of Shawn Lane by David Smith II http://www.fogmagazine.com/the-pain-of-shawn-lane/#comment-27487 David Smith II Sun, 18 Apr 2010 13:26:30 +0000 http://www.fogmagazine.com/?p=425#comment-27487 I would go into musicstores in Nashville and get special treatment and never understood until I seen some pictures of Shawn because at somestages of my life we could pass as brothers. Sadly he was already gone before I knew his name or of his amazing talent. I have battled my own health problems that have limited my own playing but with Shawn's inspiration I will continue to fight my way back and beyond, Now I have my Brother Shawn with me through my darkest hours. I would go into musicstores in Nashville and get special treatment and never understood until I seen some pictures of Shawn because at somestages of my life we could pass as brothers. Sadly he was already gone before I knew his name or of his amazing talent. I have battled my own health problems that have limited my own playing but with Shawn’s inspiration I will continue to fight my way back and beyond, Now I have my Brother Shawn with me through my darkest hours.

]]> Comment on The Pain of Shawn Lane by rituraj http://www.fogmagazine.com/the-pain-of-shawn-lane/#comment-27439 rituraj Sun, 11 Apr 2010 13:45:29 +0000 http://www.fogmagazine.com/?p=425#comment-27439 Shawn Lane changed my life...Gray pianos flying made me realise smthng.,...smthn which i believe will stay with me till the end..thank you Shawn...for the music...for everythn... Shawn Lane changed my life…Gray pianos flying made me realise smthng.,…smthn which i believe will stay with me till the end..thank you Shawn…for the music…for everythn…

]]> Comment on Fibromyalgia and ‘Brain Fog’ by Pablo http://www.fogmagazine.com/fibromyalgia-and-brain-fog/#comment-26803 Pablo Thu, 25 Feb 2010 23:06:49 +0000 http://www.fogmagazine.com/?p=387#comment-26803 The real fog is the fibromialgia mesh. For neurologist this "fibro fog" has a name; "congnitive impairment", and is typical in diseases like multiple sclerosis. Do not talk a neuro about fibromyalgia, ¿What is this? they say. For fibro sympthoms they have their own diagnostic, doing the right test of course. I´m fibro and spondylitis diagnosed by some reumatologist, and auto-imunne peripheral neuropathy by two neurologist. The sympthoms are the same for both. I think the only real thing is that I have anti-MAG/GD1a antidodies at high levels in my blood, have been tested for them, and some improvement with Imuran (aziatioprine) treatment, and diet, quiting dairy productos, bread, eggs. The real fog is the fibromialgia mesh.
For neurologist this “fibro fog” has a name; “congnitive impairment”, and is typical in diseases like multiple sclerosis. Do not talk a neuro about fibromyalgia, ¿What is this? they say. For fibro sympthoms they have their own diagnostic, doing the right test of course.
I´m fibro and spondylitis diagnosed by some reumatologist, and auto-imunne peripheral neuropathy by two neurologist. The sympthoms are the same for both. I think the only real thing is that I have anti-MAG/GD1a antidodies at high levels in my blood, have been tested for them, and some improvement with Imuran (aziatioprine) treatment, and diet, quiting dairy productos, bread, eggs.

]]> Comment on Fibromyalgia and ‘Brain Fog’ by barbara Keddy http://www.fogmagazine.com/fibromyalgia-and-brain-fog/#comment-26352 barbara Keddy Sun, 31 Jan 2010 05:57:31 +0000 http://www.fogmagazine.com/?p=387#comment-26352 Dear Joe: Your comments are so very sad, but you are not alone. There are so many of us out there who often feel that sense of hopelessness. have you read much on the new brain findings about changing your brain? I have written many blogs on it and there is hope for someone like you who is so young. read as much as you can absorb on neuroplasticity and read some of the articles I have written about how new brain pathways can be remapped and have hope that there is life while living with fibro. Very best wishes, Barbara Dear Joe: Your comments are so very sad, but you are not alone. There are so many of us out there who often feel that sense of hopelessness. have you read much on the new brain findings about changing your brain? I have written many blogs on it and there is hope for someone like you who is so young. read as much as you can absorb on neuroplasticity and read some of the articles I have written about how new brain pathways can be remapped and have hope that there is life while living with fibro. Very best wishes, Barbara

]]> Comment on Fibromyalgia and ‘Brain Fog’ by Joe Goolam http://www.fogmagazine.com/fibromyalgia-and-brain-fog/#comment-26334 Joe Goolam Sat, 30 Jan 2010 17:28:21 +0000 http://www.fogmagazine.com/?p=387#comment-26334 I am a 32 year old male who has been suffering with this issue for nearly 8 years and nobody has taken me seriously. I found the CFIDS website a while back and have not been to a recommended doctor as yet or to one who specializes in fibro, since my second doctor has said there is nothing medically wrong with me. I know I have a problem since I have headaches and back pain all the time; and for someone who was extremely fit (great athlete in soccer, track events etc) and also which my old friends and family can testify to, really smart. I was able to read books in a few hours and capture virtually everything and now cannot absorb one page. If it was not for my wife and kids, I would end my sorry life. I am a 32 year old male who has been suffering with this issue for nearly 8 years and nobody has taken me seriously. I found the CFIDS website a while back and have not been to a recommended doctor as yet or to one who specializes in fibro, since my second doctor has said there is nothing medically wrong with me. I know I have a problem since I have headaches and back pain all the time; and for someone who was extremely fit (great athlete in soccer, track events etc) and also which my old friends and family can testify to, really smart. I was able to read books in a few hours and capture virtually everything and now cannot absorb one page. If it was not for my wife and kids, I would end my sorry life.

]]> Comment on Fibromyalgia and ‘Brain Fog’ by Tammy http://www.fogmagazine.com/fibromyalgia-and-brain-fog/#comment-26205 Tammy Fri, 22 Jan 2010 15:52:14 +0000 http://www.fogmagazine.com/?p=387#comment-26205 My doctor told me in November that based on all my symptoms that she feels that I have FMS. I went through three months of terrible pain and most every FMS symptom that is known. After talking with my doctor, there have been many signs for years but I still don't know if I truly want to say that I have FMS. After Christmas, I began to feel somewhat better. By the first of the year, I thought that I was beginning to feel like my old self again. But just as I think that maybe my doctor was wrong, I will have a bad day or two or so. Just achy all over, have a headache, very tired, and just mentally feeling out of it. My doctor ran about nine different blood tests to rule out any other problems, but I have two questions: first, are there any other tests that can be performed and secondly, I am still unclear how to know if I am having a flare-up. Is it possible to go for a period of a few weeks where you feel good and then start to feel some symptoms again. I have been researching online, but need some clarity on FMS. My doctor told me in November that based on all my symptoms that she feels that I have FMS. I went through three months of terrible pain and most every FMS symptom that is known. After talking with my doctor, there have been many signs for years but I still don’t know if I truly want to say that I have FMS. After Christmas, I began to feel somewhat better. By the first of the year, I thought that I was beginning to feel like my old self again. But just as I think that maybe my doctor was wrong, I will have a bad day or two or so. Just achy all over, have a headache, very tired, and just mentally feeling out of it. My doctor ran about nine different blood tests to rule out any other problems, but I have two questions: first, are there any other tests that can be performed and secondly, I am still unclear how to know if I am having a flare-up. Is it possible to go for a period of a few weeks where you feel good and then start to feel some symptoms again. I have been researching online, but need some clarity on FMS.

]]> Comment on Kitchen Tips by Susan Diehl http://www.fogmagazine.com/kitchen-tips/#comment-26172 Susan Diehl Tue, 19 Jan 2010 14:45:06 +0000 http://www.fogmagazine.com/?p=428#comment-26172 great article, so useful, and simple. Thank you! great article, so useful, and simple. Thank you!

]]> Comment on Fibromyalgia and ‘Brain Fog’ by barbara Keddy http://www.fogmagazine.com/fibromyalgia-and-brain-fog/#comment-26154 barbara Keddy Mon, 18 Jan 2010 04:08:50 +0000 http://www.fogmagazine.com/?p=387#comment-26154 Darcy: How about mentioning fibromyalgia to your family physician to see what the response is? Darcy: How about mentioning fibromyalgia to your family physician to see what the response is?

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